As I learned quickly with Grace, complex disorder patients were lacking a well-organized research network of experts and a true research model to move the space forward faster—one built to handle different patient symptoms with no true explanation, speed up understanding of the interconnectedness of different systems, and deliver real impact. That’s exactly what CODA does.

CODA came into being because a very strong, determined patient leader - Fidji Simo - knew something more had to be done. Much more.